Every parent dreams of a healthy and happy life for their child, but for Paul and Rebecca Callaghan, their journey has been anything but ordinary. Their daughter, Matilda Rose, was born prematurely and faced serious health challenges from the moment she entered the world.
At birth, doctors noticed dark blue and red marks covering Matilda’s face. Initially thought to be bruises from delivery, they soon discovered these marks were signs of something far more serious. Matilda was diagnosed with Trachea Oesophageal Fistula (TOF) and Sturge Weber Syndrome, a neurological disorder that causes distinctive birthmarks and can lead to glaucoma, seizures, and learning disabilities.
To manage her condition, Matilda undergoes regular laser treatments to prevent the birthmarks from spreading and affecting her brain or other organs. These treatments leave temporary polka dot marks on her face, which fade after a few weeks. However, since she receives treatments every two months, her face is often covered in dots.
When the Callaghans take Matilda out in public, they often face stares and hurtful assumptions from strangers who mistake her marks for signs of abuse. “They just see what’s in front of them and jump to hurtful conclusions,” says Matilda’s father, Paul. “I wish they could see past the birthmark and see what a wonderful little angel she is.”
Despite the challenges, Matilda’s parents are determined to give her the best life possible. They share her story to raise awareness and encourage others to look beyond appearances.
